When a self injurious behavior starts I usually wrap C.J. in a blanket. As he got bigger I will give him deep pressure, for example a bear hug. I also try to not say anything during S.I.Bs, because I noticed the more I would speak the worse it wold get, and he would become more frustrated. You just have to find out what works for you and your child.
Here is a link to find out more on Self injurious behaviors:
Its that time of year again! You got it,Its back to school. This 2014-2015 school year will be a very busy one for this mom. I am returning to school, and I have two transition meetings and two I.E.P meetings coming up for my 2 1/2 year old and 4 1/2 year old. I am determined to stay organized this school year. Here are some things to help me prepare for the upcoming school year:
1)Make a list of questions and concerns
2)Make a list of services needed,such as transportation, special considerations for a regular classroom and for homework just to name a few.
3) Review Current IFSP or IEP
1.)You need any type/size of wreath base.(You can find it at Jo-Ann, Michael’s, and Hobby Lobby, Any Craft store.
2.)Ribbon (about 20 yards), use your choice of ribbon. I think that 1 1/2 inch and 7/8 width looks amazing. I used two different textured ribbon and grosgrain ribbon to add color.
1.)Cut the ribbon in strips about 5-6 inches long for a smaller wreath, for a larger wreath cut 6-7 inch long.
2.)Double knot the ribbon on the base, try different knots and see what you like!
3.) Spread out the ribbons a little more in order to use less ribbon
4.)Tie a longer piece at the top and make a bow!
5.) Hang and enjoy!
This weekend I showed my Disney Side by throwing my youngest boys a Mickey Mouse and friends birthday celebration. A few of my 4 yr. old’s friends joined us for some Disney fun. Everyone had a blast. We played some games, everyone went home with a gift. We had some delicious food and shared some laughs. All and all it was a success. I also want to share some ideas about having celebrations for special needs children.
1.) Have toys available to play with
2.) Make sure there is a quite area(just in case the noise level becomes a bit much)
3.) Try not to open gifts in front of guest( Helps to cut out meltdowns in guest)
For ideas on how to show your Disney Side and to host your own Disney Side Celebration go to: http://www.disneysidecelebrations.com/ For party ideas!
“I received free products in order to host the Disney Side @Home Celebration. The opinions expressed here
are my own.”
As some of you know I am a mother to 3 awesome boys ages 11,4,and 1 years old. I started my first journey with my son Cole when he was 26 months old, He is now 4 years old and progressing every day. Although I noticed signs way before his second birth, I didn’t really know where or how to get early intervention started. I started with his pediatrician and did a wait and see approach and by 1 1/2 he was referred to speech and audiology. Then I found out about our local Regional Center which I didn’t even know that Regional Center even existed. I Contacted the Regional Center and made an appointment for a coordinator to come and assess for a development delay. The Regional Center found that he was eligible for services. Within 3 months of services Kaiser and Regional Center Diagnosed Cole with Autism. Cole Started with only 12 hours a month and it stayed at 12 hours a month. I tried getting more hours but by the time the hours were approved the school district took over.
I started noticing some signs with my 1 year old Evan soon to be 2 March 5, around 16 months. I went to https://www.m-chat.org/The Modified Checklist for Autism in Toddlers (M-CHAT) is a validated developmental screening tool for toddlers between 16 and 30 months of age. It is designed to identify children who may benefit from a more thorough developmental and autism evaluation. Its super easy to do. When done it gives you a score and you are able to print it and show it to your child’s pediatrician and also your local Regional Center. Also there was the ASQ-3(Ages and Stages Questionnaire) http://agesandstages.com/ which I was very familiar with from over 15 years of working in diffrent child Development programs, but never thought to conduct one for my own children. Well you live and you learn.This time around I was so very prepared.
According to my own assessment and Regional assessment, Evan was also eligible for services. Evan had been diagnosed with sensory integration disorder and a speech delay. He has not been diagnosed with having autism. He has an assessment set for the end of February.Evan is currently receiving over 30 hours of early intervention at Casa Colina. Casa Colina has a very good early start program. I wish I knew about this program earlier,Cole would have definitely attended their program, but I was told he needed an autism diagnosis for that type of program,which was so terribly wrong.
I was not told about Casa Colina’s program. I research and looked for different programs myself and brought it to Evans Regional Coordinator’s attention and we worked as a team to have the program approved. Dont be afraid to look outside of the box for other services and program’s. Every State should have an early intervention program. Below are some of the step to see if your child is eligible for services. Just Click on the picture to make it larger.
Please share and leave a comment to share your experiences or even if you have questions !
Sorry I have been M.I.A.(missing in action).I’am working on new post. If there is anything you would like to see posted, feel free to give suggestion.
See ya soon!
Our StarsInc. New Resource Page! and Store full of great resources!
There are many parents and caregivers who have mental illness and don’t even know it. In all the different communities mental illness is looked at as a stigma, a label. Which is one of the reasons parents and caregivers do not seek out help.
I have read post and news clippings about parents committing suicide and taking there children’s lives. This saddens me that there was no emotional support for them and that it got to the point of not wanting to live. We are human and humans have a breaking point.
But before a parent reaches that breaking point there should be services provided (therapies,medication,yoga,support groups,respite) I have yet to see a program like the one I am describing. My hopes for Our Stars Inc. in the near future will be to start a program like the one I mentioned.
I believe we need more help and support for parents and caregivers. We schedule and take our children to appointments and to different therapies. We need to take time out and schedule an appointment to talk to someone weather it is a Pastor, Doctor,or an understanding friend. Never try to hold in your feelings, because eventually they will consume and break you. Always let some one know how your feeling, sometimes we may not notice that we are breaking down. The person you speak with may notice and help you find help. It is ok to ask for help, you are not weak for asking for help. Here are some helpful links for mental Health services.
Please share your experiences with me and what you are doing to help yourself, someone may read this and it could help them! Thank you and please share!
My thoughts and prayers are with all the families out there struggling!
I am always asked by others,”how do you do it”? My response is “I have no other choice, if I don’t then who will! Usually only people who knows my struggle with my own disabilities ask this question. As most of you already know I am a mother of of three boys! One of my boys have been diagnosed with autism.
Having a child with a disability is hard enough,when you have your own disability or should I say different ability, it’s even harder. I have been told wow you don’t look ill or even disabled. I take it as a compliment. I try my best to not complain or even show I am in pain sometimes.
These are some of my different abilities I have: osteoarthritis in my right knee and need a total knee replacement, I had a ligament repair surgery on my left ankle.Last year after the birth of my youngest son I suffered from a blood clot in the left lung and was hospitalized five days after giving birth. I have recently been diagnosed with Fibromyalgia. I struggle everyday to push forward and not let my disabilities consume me. Everyday is a new day! That’s how I am able to get through each day.
Here are something’s to do to make your days a little easier:
1.) Take care of your self- make sure your ok health wise, eat right
2.)I keep a planner/calendar – I write all my appointments and notes for my family
3.)I schedule myself some me time- cup of coffee, book,movie
4.) Don’t sweat the small stuff- don’t spend your time getting upset over every little thing.
5.)Write your thoughts and feelings in a journal/notebook
I would love to hear from other parents or caregivers who have a disability who care for a child who has autism!