This weekend I showed my Disney Side by throwing my youngest boys a Mickey Mouse and friends birthday celebration. A few of my 4 yr. old’s friends joined us for some Disney fun. Everyone had a blast. We played some games, everyone went home with a gift. We had some delicious food and shared some laughs. All and all it was a success. I also want to share some ideas about having celebrations for special needs children.
1.) Have toys available to play with
2.) Make sure there is a quite area(just in case the noise level becomes a bit much)
3.) Try not to open gifts in front of guest( Helps to cut out meltdowns in guest)
For ideas on how to show your Disney Side and to host your own Disney Side Celebration go to: http://www.disneysidecelebrations.com/ For party ideas!
“I received free products in order to host the Disney Side @Home Celebration. The opinions expressed here
are my own.”
As some of you know I am a mother to 3 awesome boys ages 11,4,and 1 years old. I started my first journey with my son Cole when he was 26 months old, He is now 4 years old and progressing every day. Although I noticed signs way before his second birth, I didn’t really know where or how to get early intervention started. I started with his pediatrician and did a wait and see approach and by 1 1/2 he was referred to speech and audiology. Then I found out about our local Regional Center which I didn’t even know that Regional Center even existed. I Contacted the Regional Center and made an appointment for a coordinator to come and assess for a development delay. The Regional Center found that he was eligible for services. Within 3 months of services Kaiser and Regional Center Diagnosed Cole with Autism. Cole Started with only 12 hours a month and it stayed at 12 hours a month. I tried getting more hours but by the time the hours were approved the school district took over.
I started noticing some signs with my 1 year old Evan soon to be 2 March 5, around 16 months. I went to https://www.m-chat.org/The Modified Checklist for Autism in Toddlers (M-CHAT) is a validated developmental screening tool for toddlers between 16 and 30 months of age. It is designed to identify children who may benefit from a more thorough developmental and autism evaluation. Its super easy to do. When done it gives you a score and you are able to print it and show it to your child’s pediatrician and also your local Regional Center. Also there was the ASQ-3(Ages and Stages Questionnaire) http://agesandstages.com/ which I was very familiar with from over 15 years of working in diffrent child Development programs, but never thought to conduct one for my own children. Well you live and you learn.This time around I was so very prepared.
According to my own assessment and Regional assessment, Evan was also eligible for services. Evan had been diagnosed with sensory integration disorder and a speech delay. He has not been diagnosed with having autism. He has an assessment set for the end of February.Evan is currently receiving over 30 hours of early intervention at Casa Colina. Casa Colina has a very good early start program. I wish I knew about this program earlier,Cole would have definitely attended their program, but I was told he needed an autism diagnosis for that type of program,which was so terribly wrong.
I was not told about Casa Colina’s program. I research and looked for different programs myself and brought it to Evans Regional Coordinator’s attention and we worked as a team to have the program approved. Dont be afraid to look outside of the box for other services and program’s. Every State should have an early intervention program. Below are some of the step to see if your child is eligible for services. Just Click on the picture to make it larger.
Please share and leave a comment to share your experiences or even if you have questions !
Sorry I have been M.I.A.(missing in action).I’am working on new post. If there is anything you would like to see posted, feel free to give suggestion.
See ya soon!
Our StarsInc. New Resource Page! and Store full of great resources!
There are many parents and caregivers who have mental illness and don’t even know it. In all the different communities mental illness is looked at as a stigma, a label. Which is one of the reasons parents and caregivers do not seek out help.
I have read post and news clippings about parents committing suicide and taking there children’s lives. This saddens me that there was no emotional support for them and that it got to the point of not wanting to live. We are human and humans have a breaking point.
But before a parent reaches that breaking point there should be services provided (therapies,medication,yoga,support groups,respite) I have yet to see a program like the one I am describing. My hopes for Our Stars Inc. in the near future will be to start a program like the one I mentioned.
I believe we need more help and support for parents and caregivers. We schedule and take our children to appointments and to different therapies. We need to take time out and schedule an appointment to talk to someone weather it is a Pastor, Doctor,or an understanding friend. Never try to hold in your feelings, because eventually they will consume and break you. Always let some one know how your feeling, sometimes we may not notice that we are breaking down. The person you speak with may notice and help you find help. It is ok to ask for help, you are not weak for asking for help. Here are some helpful links for mental Health services.
Please share your experiences with me and what you are doing to help yourself, someone may read this and it could help them! Thank you and please share!
My thoughts and prayers are with all the families out there struggling!
I am always asked by others,”how do you do it”? My response is “I have no other choice, if I don’t then who will! Usually only people who knows my struggle with my own disabilities ask this question. As most of you already know I am a mother of of three boys! One of my boys have been diagnosed with autism.
Having a child with a disability is hard enough,when you have your own disability or should I say different ability, it’s even harder. I have been told wow you don’t look ill or even disabled. I take it as a compliment. I try my best to not complain or even show I am in pain sometimes.
These are some of my different abilities I have: osteoarthritis in my right knee and need a total knee replacement, I had a ligament repair surgery on my left ankle.Last year after the birth of my youngest son I suffered from a blood clot in the left lung and was hospitalized five days after giving birth. I have recently been diagnosed with Fibromyalgia. I struggle everyday to push forward and not let my disabilities consume me. Everyday is a new day! That’s how I am able to get through each day.
Here are something’s to do to make your days a little easier:
1.) Take care of your self- make sure your ok health wise, eat right
2.)I keep a planner/calendar – I write all my appointments and notes for my family
3.)I schedule myself some me time- cup of coffee, book,movie
4.) Don’t sweat the small stuff- don’t spend your time getting upset over every little thing.
5.)Write your thoughts and feelings in a journal/notebook
I would love to hear from other parents or caregivers who have a disability who care for a child who has autism!
Here are a few favorite birthday quotes!
I hope you enjoy them as much as I do!
Everything I know I learned after I was thirty. – Georges Clemenceau
Time and tide wait for no man,
but time always stands still for a woman of thirty.
- Robert Frost
Getting old ain’t for sissies.
- Bette Davis
Celebrating birthdays in my family is kind of a big deal, for me any ways! Not Necessarily having a huge party, but doing fun things my family loves doing. My birthday is in five days. I asked some friends what I could do with my children on my birthday since I usually have a sitter. They all gave me some great ideas. That’s when I said to myself,”self these are some awesome Ideas to celebrate Kid birthdays as well”. I will share them with you.
1.)Movie night and take out
There is so much controversy about vaccinations and how they cause autism! There has been research done on this matter. There is not a single answer to weather or not vaccinations are the actual cause. In my opinion I believe the risk of not vaccinating my children out weigh the other possible risk of developing autism. I spread there vaccinations out. So there not getting them all in one visit.Remember your the parent and if your pediatrician gives you a hard time about it, it’s time to switch Pediatricians.
***Warning I am not a medical professional, this is my opinion only!***
There is one vaccination I won’t allow my children to receive and it is the influenza vaccination. My reasons for this are: I don’t receive it myself,due to the fact I am allergic to eggs and the influenza vaccination has traces of egg. I have never gotten the influenza vaccination due to this reason only. I have watched my identical twin sister become very ill after the vaccination. My younger sister had her 3 year old vaccinated and she became very ill.My sister told me she felt forced to vaccinate for influenza. I told her she has the last say! From then on my niece does not receive the influenza vaccination.
Now by no means am I saying not to get the influenza vaccination. It still helps many people. My point is always keep an eye out for different things that could be a warning sign that your body or your child’s body may not be able to handle and make sure you let the doctor know right away.
Here are some links for more information:
Facts on influenza vaccination
Research on vaccinations and autism